The Radical Redesign Continued

Following on from the second amputation I went through a period of physio to get me ready for and then proficient on my new legs. Having had lifelong problems with my gait this was never going to be easy but the physios worked me hard and I everything they through at me to ensure I had the best chance of being as mobile as possible. Like most things in life, you get out of it what you put in and a lot of the time I’d leave physio looking like I’d had a fairly heavy gym session as you can see below.

A wheelchair user sits outside a 2 story hospital buidling. He has short green hedges either side of him. He is wearing a teal close fitting t-shirt that has darker patches due to the sweat from a recent physio session
After physio

This got me more in touch with my body and colleagues noticed that I was looking ‘buffer’ to use their words. This inspired me to try to do something to keep fitter once the twice weekly physio sessions stopped. After a bit of searching, I found a local lake ran open water swimming sessions several times a week. I went along to see how accessible it was and the staff and other swimmers couldn’t have been more welcoming. I started going regularly and I was managing 250m – 400m with a bit of effort. Thene one week at the beginning of August I decided to push myself. I did 500m on the Monday, 500m on the Tuesday, 400m on the Thursday, 750m on the Saturday and to my amazement 1,000m on the Sunday. After that I was doing over 1km every session. The summer ended before I could push out to 1.5km and 2km but I kept swimming through the winter, just not in the water for anywhere near as long. The act of getting in the water and the camaraderie with the other swimmers has been amazing and a real boost to my mental health.

I’d posed for photographers in the past and one of the things I promised myself found out I had to have the second amputation was to get some new photographs done. I finally managed this in November at a small studio near Southampton. I had a few conversations with the photographer beforehand and went to the shoot with a really open mind about what images to capture. The studio was great with a range of sets for a selection of moods. I was there for about four hours and got some images I was really proud of. It was good to see my ‘new’ body from a different perspective and shown in it’s best light.

Disability and Attraction

I love seeing images of disabled people celebrating their bodies and enjoying them as physical, sexual things.

Disabled bodies can be wonky, scarred, assortedly non-standard and let us down but they are ours and we deserve to be able to enjoy them when we can. This can be difficult in a world where bodies like ours are seen as ‘other’ and even offensive. Over the last few years the ‘democratisation’ of publishing through things like blogs, image sharing sites and social media has meant that disabled people have been able to tell their stories more freely with less editorial intervention.

I’ve done it myself. I started taking pictures of myself then putting them online and learning to appreciate the ‘good’ bits and ‘bad’ bits. To see myself from a different angle and to be honest about my body and that I can and do enjoy it. It’s very hard to not use the word ‘despite’ here. The idea of disabled people doing ‘normal’ things despite their disability is so woven into the culture I grew up and live in, that it’s difficult for me even as a disabled person to articulate some things without falling into those patterns of thought. My disability is entwined throughout all I am and my identity as I was born with it. It has shaped every aspect of my life. I’m sexual and enjoy my sexuality as much because of my disability as despite it

I have two friends, both disabled, who have also found this gateway back into their bodies and sexualities. One has fairly recently become disabled and one has been disabled all their life. The one who recently became disabled felt that she wasn’t who she had been and needed to regain some of that sense of self. The other had always been in touch with her sexuality and body and had sucessful relationships but when the menopause hit, she lost this connection. By creating images and then sharing them they have reconnected with their bodies and sexuality in a way that they probably would not have any other way. To see the change is wonderful. They are at different stages in the journey and it’s one they are planning to continue.

This is something we need to normalize. Disabled people should be as open and proud about their bodies as they want to be. The image of a nude disabled person should be just like any other nude image in a culture. I’m glad to say there are a few people with a range of disabilities starting to make that happen.

Can You Have Sex?

One of the surprisingly common questions visably disabled people get asked in public by complete strangers is whether we can have sex. This purient interest seems to be universal and I’ve been asked by men and women, young and old. It’s more common when out for an evening when people have had a few drinks bit I’ve been asked on a train on the way into work too. People will ask disabled people a range of things they’d never dream of asking a non-disabled person, especially a complete stranger.

For most disabled people, the answer is yes, but it’s complicated. There are the usual range of sexualities, sexual identities and levels of libido amongst disabled people as there are in non-disabled people. Disabled asexual and aromantic people exist in the same way they do in the wider population so not all disabled people who don’t have sex are not having it because of disability or circumstances.

Talking of circumstances, the term ‘involuntary celibate’ was originally coined to describe those people who, because of living settings, were unable to persue sexual relationships. This can include those living in care homes where the management forbids sexual activity between residents, those where they need personal care and assistance for sexual activity and don’t have a support network that enables this and those whose living conditions prevent them making appropriate contact with potential partners. This term has been hijacked by those inadequates who think that the world owes them a sexual relationship when what’s stopping them is their personality and behaviours rather than circumstances beyond their control. Of course, disabled people can fit into this catergory too. We can be angels, arseholes and everything in between.

Sex as a disabled person is complicated. For a lot of us, our bodies function differently. They are more sensitive, less sensitive, bend more, bend less, tire more easily or need more energy for a given scenario. Undressing can be tricky and we often have a range of thhings attached to us that complicate matters meaning we need to work around them or carry spares. A late night knee-trembler around the back of Aldi isn’t impossible but would take quite a bit of planning.

There’s also how we feel about ourselves. Some are raised to belive that sex ‘isn’t for them’ and people won’t find them attractive. Others will have issues with body image due to the disability or the medical interventions it has required. Some will have had significant negative experiences.

I’ve got no real conclusions apart from asking people to stop asking such intrusive questions when we’re just going about our daily lives. Also, if you are thinking about having sex with a disabled person, keeping a sense of humour and expectng the odd false start goes a long way.

A Radical Redesign

I had some fairly significant news over the summer. Investigation into a small infection revealed a serious problem that resulted in losing my right leg below the knee in October.

I lost my left leg below the knee in Deccember 1999 and over the years had become used to how I looked without it. Over the last few years I’ve got more and more comfortable with my body and started to recognise that some people did find it attractive. With the news about the upcoming surgery I did wonder how I’d feel with the new configuration. I was also concerned about how I’d manage physically once out of hospital as where I live isn’t the most accessible house.

The surgery was incredible. Care was excellent and pain management was perfect. I was in as good a head space as possible and had gone into the process determined to make the best of it. One of the things that I planned to use to help me get used to the reconfigured me was to take photographs. I’d used taking photos as a way of appreciating myself from a different perspective than just seeing myself in the mirror. I also shared them on line as it was useful seing how other people see me

I took this one three days after surgery as I wanted to both capture the journey and also see myself as a photographic subject very early on as part of the process of getting used to things. Taken very early in the morning on a deserted ward, it felt an important part of the process.

Recovery took a while, complicated by a thumb injury which needed surgery and effectively made me bed-bound for five weeks. During this time I ate far too much of the wrong stuff and put on weight. I had a spell around Christmas where I didn’t like myself that much at all but I kept on plodding on.

Then I went back to work and started physio as part of getting ready for new legs. This gave me a boost of energy and the ability to refocus. The additional exercise and eating more sensibly also helped me feel more ‘back to normal’. This week I decided to take a couple of nudes to see how far I’ve come and I was pleasantly suprised by the finished article. Taken while showering they showed me as I am now without any additions. The me in the images is someone I’m confortable being and has given me the nudge to carry on taking images and celebrating who I am and what I look like.

The Cameras in my Life

We were never a particularly photographic family. We didn’t have albums and albums of family events and from my dad’s time at sea when he visited large swathes of the world. For a while I don’t think there was even a camera in the house.

This changed in 1975. I had large surgery in early July (the week the Americans and Soviets linked up in space) and for being good while in hospital, my parents bought me a 110 point and shoot camera. 12 or 24 shots on a cassette and the flash was a cube with some kind of pyrotechnic material that you plugged into the top and it rotated when you wound the film on. It had no controls apart from the shutter release but I still tried to capture the big events in my life. Somewhere I have blurry photos of my house from the air from a trip in a light aircraft with a friend’s dad who had a pilot’s licence, my dad pulling the face he usually had in front of ‘A’ turret on HMS Belfast, clambering on rocks on The Lizard in cagoules that packed into the chest pocket on a rainy holiday in Cornwall. There are a few of distant specks that were my attempt to capture aircraft at an airshow.

I went away to school and found a range of Time-Life books in the library were full of amazing photojournalism as well as introducing me to Cartier-Bresson, Capa, McCullin and more. I started to see pictures as more than just the snap recording the event. I was lucky, my housemaster was a keen photographer and had a Nikon SLR that he let me have a go with. He taught me to process and print my own images which was like some kind of alchemy. After pestering my parents for what must have been over a year, I got a Zenit E SLR for Christmas. It was a tank of a camera. Fully manual with a built in light meter for calculating exposure I remember being made up with it and shot as much as I could afford to with it. I was never particularly good but I loved it, especially when I saved up and got a longer lens for it. It was clunky and I wasn’t paying much attention to things like composition but was happy when I got results that were in focus and properly exposed. Eventually it suffered a mechanical failure that ripped film to shreds in it and I couldn’t afford to get it fixed.

I left school and got a job and once I’d covered the big expenses like learning to drive and getting my first car, I bought my Olympus OM-10. This felt like my first proper ‘grown-up’ camera and I tried to be a bit more arty with it. I experimented with light trails at night, stalking garden wildlife, portraits of friends and family who’d sit still long enough. I managed to get the airshow shots I’d dreamed of as a kid. As things do, life got in the way and I let the photography slide until I realised that I was just neglecting the camera. I found someone looking to get into photography and gave the camera to them. I had a rugged point and shoot that I used for trips and family events etc that met my needs at the time.

 Then in 2010 I found digital photography and bought my first digital SLR, a Canon EOS 300D. It was very entry level but helped me learn. When I could I upgraded the body and passed that and one of the kit lenses to a family friend who had borrowed it a couple of time and loved using it. I’m not brilliant by any means and definitely not good at landscape or street photography but suspect that’s as much about me not having done it enough to learn what to do or not do. I love shooting people and had some shoots with models where I’m really pleased with the results so I’m getting there slowly.

From the internet I’ve got chatting with people who shoot with film and I bought a film SLR body that fits my digital SLR lenses but due to the last 18 months I’ve not had time to play with yet. It will be interesting having to think through each shot as there are only 24 or 36 shots on a roll. I’ve just bought one of the lenses that came with my Zenit which will be fun to experiment with. Also today, in a complete circle I was offered an OM-10 body so looking forward to the feel of that with what I’ve learned since.

I need to get out there, shoot more, get critique and challenge myself if I want to do photography rather than just being someone with cameras.

Body Image

One of the things that often affects disabled people is body image issues. There are very few positive, sexy representations of disabled bodies in the media so most of us grow up seeing ourselves as ‘other’.

Of course, I can only speak from my own perspective as a white cis disabled male, and I would expect the issues to be far more complex for others.

I’ve always been comfortable being naked for a few reasons.

Going naked liberates me from some of the paraphernalia of disability; bags, callipers, odd fitting clothing due to a wonky body.

As I was born with my disability and had lots of surgery and the tests that go with it, I’ve been having to be naked or semi-naked for the medics for as long as I can remember. As my case is often ‘interesting’ it’s not unusual to be asked to allow medical students in too. While this can sometimes feel invasive, it’s surprising how quickly you adapt to it as a norm and just get on with things as if you were dressed. To be fair to the medical professions, they have always done their best to maintain my dignity. Sometimes I’ve been happy to forgo this if it makes things faster and easier for me and them.

When I was due to go to secondary school, the only viable option where I could get accessible education and still take exams was to go to boarding school about 40 miles from home. The school went co-educational the year I started, and the accommodation was, understandably, single sex. In my time there I was on dormitories of seven, six, a couple of fours, a double and finally a single for my sixth form years. The bathrooms were all shared and two baths and two showers in a bathroom weren’t unusual so there was effectively no privacy. As a result, you got used to being seen naked and seeing others naked. The nature of some of the other kids’ disabilities meant they needed assistance with dressing and bathing so there were always staff around as well.

While I was perfectly happy being naked, I was never happy with what I saw when I was. I never thought of my body as anything desirable, something people would find sexually attractive. I always saw the scars, the wonkiness, the appliances as well as the ‘normal’ issues with build and weight. Once digital and phone cameras came along, I was happy sharing nudes with partners but never really enjoyed looking at them and did wonder why people said yes to them.

Then I came across the NSFW community on Twitter and was lucky enough to encounter some wonderful people. Their warmth, acceptance and kind genuine comment on the images I shared helped me see that I was physically desirable, and my body was something to be proud of and enjoyed as much as anyone else’s. It gave me some pride which helped me to exercise a little more which reinforced the change in my perspective regarding myself. What it has taught me is that often we aren’t the best judge of how we look. We look for the things we dislike, the things we’d like to change to fit closer to that media led ‘norm’ often subconsciously. Better media representation of a range of bodies as normal and desirable would be wonderful and help so many people.

About me

Hello! I’m Dave and my pronouns are he/him. This is a “not suitable for work” blog that will hold some of my photography and my thoughts, feelings and experiences around sex and sexuality.

A bit of background. I’m 53 and I’m bisexual. I was born with Spina Bifida, a condition where the spine doesn’t properly develop before birth. This leads to nerve impairment and loss of function. How severe this is depends on how high up the spine the damage is. I’m fairly fortunate that my damage is quite low so I can still walk after a fashion although I can’t really feel my feet. As a result of this I suffered some damage and ended up losing my left leg below the knee in 1999. Now I use a wheelchair for getting around outside of the house.

There are a lot of odd perceptions about disability and sex and growing up the amount of useful sex education I got was effectively zero. I thought I’d blog to be frank about things as I see them, my experiences and things I’ve learned.

I also like photography so will be including photos I’ve taken of myself and others both with my ‘serious’ camera and the universal phone camera.

Feel free to ask any questions and I’ll answer any I can.